Friday, 21 January 2011


In 2009, Whittemore Peterson Institute scientists discovered a significant link between a newly-found retrovirus, xenotropic murine leukemia virus-related virus (XMRV), and the neuroimmune disease, ME/CFS. Their ground-breaking discovery was published in the world-renowned journal Science, on 8th October, 2010.

This discovery brought renewed interest to the much-maligned disease and a flurry of research was conducted in order to confirm the link.

On August 23rd 2010, US government scientists validated the link, announcing they had found an association between a family of infectious murine leukaemia viruses and ME/CFS. They reported that 87% of those sampled carried at least one of the retroviruses, along with 7% (1 in 14) of the healthy controls.

XMRV is similar to HIV, the retrovirus that causes AIDS.

Following the validation study several countries banned ME/CFS patients from giving blood. In many cases these bans are for life.

For more information on XMRV and the Whittemore Peterson Institute, please visit the following site:

If you would like to donate a regular, small amount to help push this research on, then please consider participating in the COUNT ME IN campaign. For more details visit:

Key Scientific Papers & Related:

Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome Science

Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors

Aug. 23, 2010 – Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors PNAS FDA Press Briefing

Blood Donor Bans:

Pertinent News & Blog Reports:

A Big Splash From an Upstart Medical Center New York Times

New Hope in Fatigue Fight Wall Street Journal

Viruses Found in Chronic Fatigue Syndrome Patients – National Institute of Health NIH Research Matters

The Lingering Mystery of Chronic Fatigue Syndrome

Exhausted by Illness, and Doubts

XMRV and CFS – It’s not the end

Gearing Up for the Big Search for XMRV

Other XMRV Links:

Cleveland Clinic - 40% of patients with aggressive prostate cancer have XMRV

XMRV: Virological, immunological and clinical correlations in patients with chronic lymphocytic leukemia and mantle cell lymphoma

Xenotropic Murine Leukemia Virus–related Gammaretrovirus in Respiratory Tract


Of mice and men: on the origin of XMRV

XMRV retrovirus found in 62% of ME patients tested in Lillestrøm, Norway


1st International Workshop on XMRV: Abstracts in Reviews in Antiviral Therapy & Infectious Diseases 2010_8. Abstracts

Distribution of xenotropic murine leukemia virus-related virus (XMRV) infection in chronic fatigue syndrome and prostate cancer Pubmed.gov

A Third Pathogenic and Lymphotropic Human Retrovirus AIDS Review

**All these were taken from a template on XMRV Bloggerama Day :

as I wasn't able to think properly enough today but with wonderful friends like Andrea Pring offering this template I could still take part. Thank you Andrea.x


  1. Great post, Carole; so glad you are helping to spread awareness of this retrovirus, XMRV. Funding is desperately needed to enable this research to continue; without it 17 million people will remain sick... and quite possibly contagious. The research must continue - fund the WPI!

  2. thank you for taking your time and precious energy to bring accurate education on the matter of ME and the XMRV retrovirus. The governemnts need to take this very seriously for the sake of those 17 million who are already sick and to protect those who as yet are not.

  3. Well done on taking up the Bloggorama challenge and sharing this vital information.

  4. I used Andrea's template as well. Thank you for taking the time to share even when you are struggling. We need more research and more funding for XMRV research to help the millions of us living this nightmare of ME/CFS!

  5. well done you, making people aware of the great work the WPI are doing on XMRV, an sharing your story about life with ME, thank you chris xx

  6. Hi :) Thanks for blogging today! I used the same template (thank you, Andrea!) as I didn't have a brain that would cooperate. I've blogged about XMRV severalt times before, though... in Norwegian. :) Today it's all English. :)

    Big hugs from Norway

  7. Thank you for posting, and sharing this important information!

  8. Hi Carole,
    Interesting news regarding XMRV. Nicely summarized.
    I am amazed at the potential for discovery in this field.

  9. I think it is important to support the WPI because they make a lot of good research with little budget. They need out money, we need their research.

  10. Funding and right kind of research is the key.